MND Association. Norfolk, Norwich and Waveney Branch



The Norfolk, Norwich and Waveney Branch of the Motor Neurone Disease Association has the sole aim of serving all those in the area who are affected by Motor Neurone Disease (MND). This includes people with MND, their carers, family and friends, in fact anyone who has been touched in some way by the disease.


We liaise with health and social care professionals such as Speech and Language Therapists (SaLT), Occupational Therapists (this includes Wheelchair Services) and Neurological Nurses. National Office fund a Regional Care Development Adviser Post. We are fortunate in being supported in our work by two RCDAs, Lindsay and Liz, who fill the post on a job share basis - if you are unable to contact one it is perfectly acceptable to try the other. Lindsay covers Norfolk and part of Cambridgeshire. Liz covers Suffolk and the rest of Cambridgeshire. As the need arises we are able to request support from a voluntary Care Services Navigator.

Norfolk, Norwich and Waveney Committee
From left to right Judy Burns-Thomson, Sue Heal, Trish Bates, Jo Heal, Helen Devlin, Simon Perkin, Malcolm Chubbock, Anne Gillett.

Our branch holds regular support meetings and lunches for people living with MND and their carers. These provide an opportunity to meet with other people living with the disease, and to share experiences and ideas.


Fundraising and raising awareness are also an important part of branch activities. We organise a number of events throughout the year which are well supported. Additionally we are very fortunate to be assisted by a number of individuals and organisations within the region. They raise money for use by the branch to help people living with MND or to help fund research into MND to learn more about the disease and help to find treatments. Every event helps spread the word about MND and raise people's understanding of what it means to live with MND.


The Norfolk, Norwich and Waveney Branch is run entirely by volunteers, many of whom have personal experience of the disease. We are always interested in hearing from people who can help with events or who want to get involved with running the branch. If you would like further information about our meetings, would like to receive a hard copy of our newsletter, Fightback, or wish to get involved with our branch, please contact Judy Burns-Thomson.


For more information about the work of the Association, and up to date information regarding the disease, care and research, please visit the National Office website