King’s Lynn Support Group

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Recent news

 

Thank you Tesco!

Tesco Bags

We are extremely grateful to Tesco, who have recently donated £500 from their 'Bags of Help' fund, to support the local activities of the Kings Lynn Support Group.

 

This donation will be put towards providing essential equipment for local people living with MND.

 

MND Register

People diagnosed with MND are encouraged to sign up to the MND Register. You can find out more about joining the MND Register to help leading researchers learn more about this disease. Alternatively you might like to ask about joining at your next clinic appointment.

 

FRUIT & CHEESE BASKETS FOR PEOPLE WITH MND IN KINGS LYNN AREA THIS SUMMER!

NCF

The Kings Lynn Support Group is extremely grateful to the Norfolk Community Foundation for a very generous donation. This has been given to enable the Group to provide summer fruit baskets and cheese boxes to everyone with MND they are in touch with, in Kings Lynn and West Norfolk.

 

The gifts will be delivered by Accent Fresh of Downham Market to each person with MND, who will receive baskets in early June, early July and early August.

 

‘People with MND are extremely vulnerable and isolated from family and friends, due to Coronavirus’ said Jane Lewis, Chair of the Support Group. ‘They will be really appreciated by them, their carers and families, whilst facing the devastating illness.’

 

Jenny Bevan, Head of Programmes at NCF said 'Norfolk Community Foundation is delighted to support this project. We hope that it will help to lift spirits at this difficult time and be enjoyed by people living with Motor Neurone Disease and their families.'

 

New Year Donation !

We are very grateful to Daniel Touchin for presenting a cheque for £2,370 to the Kings Lynn Support Group from a New Year Shoot, held in memory of his father, Martin Touchin.

 

A great success and special thanks to Chantall and Stuart Ridd-Jones at Harrowden Turf at Hockwold, for allowing Daniel and colleagues to organise the shoot and to the gamekeepers at The Shadwell Estate for their generous support and donation. This amount will make a real difference for local people living with MND.

 

Royal Warrant Holders

Royal Warrant Holders Charity Fund Donation

The Royal Warrant Holders Charity Fund has generously donated £1800 towards the cost of short respite breaks for local people living with MND in the Kings Lynn area.

 

The grant-giving charity fund is supported by all those companies who hold a Royal Warrant – businesses who provide goods or services to the royal family. People with MND may apply to the Association for care or quality of life grants, by consulting a health or social care professional and/or by speaking to their Association Visitor.

 

We are very grateful to the Charity Fund for their support, which will be much appreciated by people living with MND.

 

Photo L to R : Michael Pudney, Trustee, RWHA Charity Fund; Jane Lewis, Chair, Kings Lynn MNDA Support Group; Nick Farrow, Chair RHWA Charity Fund.

 

 

Commemorative tree planting - November 2019

Father Paul Gismondi lead prayers and thoughts for all those affected by MND as a Flowering Cherry, Prunus Royal Burgundy, was planted at Tapping House, the Norfolk Hospice on 1st November. The tree was planted to commemorate the 40th year of care, support and research by the Motor Neurone Disease Association and to thank the Hospice for their generous support and services offered to local people living with MND and their families.

Tree planting
Tree planting

 

Association Visitor Volunteers Needed

Could you help support someone with Motor Neurone Disease in our area? Details here:

Poster

Role description

 

"Bike for Brian" Event - July 2019

Despite the wet weather, 51 riders came along on Sunday to take part in the annual Bike for Brian event to raise money to support people living with Motor Neurone Disease in our area. Participants ranged from 7 to 81 years of age and this year we were excited to see two penny farthing bicycles and a pony and trap complete the course.

 

We raised over £1200 on the day from entry fees, sponsorship money and a raffle. We were very happy to be able to start and finish the event at The Angel where riders were able to relax and enjoy a burger after their efforts. Many thanks to Emily and Richard for the excellent barbecue!

 

Thank you to everyone who rode and all our supporters who came along and helped us raise funds for this very worthy cause.

 

See the article in "Your Local Paper" here.

 

Bike for Brian
Bike for Brian
Bike for Brian

 

Volunteering Opportunities with King's Lynn Support Group - July 2019

We currently have vacancies for the following volunteering roles:

Additional Association Visitor - general descriptive leaflet here

Administration

 

 

Norfolk Campaigners
Jeremy Vine, Sue Heal (Norwich), Peter Aldous MP, Martin Burnell and Dianne Hepburn (Kings Lynn) at parliamentary meeting.

Kings Lynn & Norfolk campaigners meet MPs - 3 July 2019

Norfolk campaigners travelled to Westminster on Wednesday 3 July to join TV and radio presenter Jeremy Vine, MPs, Peers, Clinicians and representatives of the Motor Neurone Disease (MND) Association and Marie Curie to mark the release of an APPG* parliamentary inquiry report on Terminal Illness, which deems the current benefits system for dying people `not fit for purpose’

 

The MND Association and its Norfolk Supporters have been campaigning for a change in the law under the `Scrap 6 Months’ banner for the last year

 

*APPG - All Party Parliamentary Group, informal cross party groups.

 

 

 

 

 

 

 

Plant sale and Coffee morning 22 June 2019

Some images from the Plant Sale at Blakeney. Just over £1900 raised, so a great result and special thanks to all who helped on the day, as well as all those who baked delicious cakes and to the Carers Friendship Group who provided fantastic raffle prizes.

Blakeney
Blakeney
Blakeney
Blakeney

 

Dianne Hepburn

Parliament "Carers Week" Event

Dianne Hepburn was delighted to be asked to represent the MND Association at a Parliament ‘Carers Week’ event, where she was able to speak with Kings Lynn MP, Sir Henry Bellingham, about the importance of the support and recognition that carers need.

 

 

 

 

 

 

 

 

 

 

 

 

 

Walk to D’feet in Kings Lynn - 21 June 2019

Walk to Dfeet

 

Just a few photos from this year's Walk to D'feet MND in Kings Lynn.

 

Twenty two walkers and one dog, no rain (but no Red Arrows display or Water Ski Championships this year either...we thought a Royal Visit would be a good alternative, but it didn’t materialise!)

 

A big thank you to all the Walkers and especially the balloon and collecting tin/bucket 'volunteers' - £64.79 collected and hopefully a few more people in the town will be more aware of Motor Neurone Disease and the challenges associated with it.

Walk to Dfeet
Walk to Dfeet

 

Donation April 2019

Donation from two local masonic lodges - April 2019

Very generous donation from local masonic lodges, St Winnold Royal Ark Mariners and East Anglian Mark Benevolent Association.

 

£500 towards short stays at Park House Hotel, Sandringham for local people living with MND.

 

Park House is a Leonard Cheshire hotel with special facilities to care for people with disabilities.

 

 

 

 

 

 

 

Walk to D’feet in Kings Lynn - June 2018

Twenty five people joined the Kings Lynn annual 'Walk to D'feet MND', to raise awareness of MND. Whilst the focus was on raising awareness, some great fundraising was celebrated too.

Walk 2018 The middle of the walk
Walk 2018 ...and the end!
Walk 2018 Fly-past by the Red Arrows!

 

 

The morning kicked off with young Rosella Clare presenting a cheque for £300, in memory of her aunt, Mandy Gamble, raised from completing the Mini GEAR run and a fundraising hair cut, with an amazing 21" cut off.

 

Two supporters from North Walsham had raised about £350 for the Norwich branch prior to the event and just over £86 was collected during the walk.

 

We thought that the water skiing world championships on the river during our coffee break last year was pretty amazing....

 

.....this year we were treated to a fantastic Red Arrows display, as we enjoyed our break on the Quay.

 

Right over our heads during our coffee break on the Walk to D’feet.

 

Photo by Louisa Hopson, who was walking with us and fundraising for Norwich!

 

Cheque presentation

St Winnold Masonic Lodge Cheque Presentation

Kings Lynn Fundraising Group were presented with a very generous donation of £1,000 on Saturday, 28th October, by The St Winnold Masonic Lodge at Downham Market, as part of their Tercentenary Celebrations.

 

 

 

 

 

 

 

 

 

 

 

 

Cheque Presentation from Mands Ball & Walk to D'feet MND KL 2017

Walk to D'Feet 2017

Walking & Dancing to D’feet Motor Neurone Disease. Supporters of the Motor Neurone Disease Association took to the streets and river banks of Kings Lynn in June, to increase awareness of this cruel disease for which there is no cure.

 

The Walk to D’feet MND began on a high note, with Hayley Rudd and Michelle Hanslip presenting a cheque to the Association for £4,746.73. This outstanding amount was raised from an extremely successful Charity Ball they had organised earlier in the year at Knights Hill Hotel and will go a very long way towards helping people living locally with Motor Neurone Disease.

 

Hayley and Michelle were motivated to raise funds for MNDA in memory of their aunt and sister, Mandy Gamble, who they lost to MND and who would have been celebrating her 50th birthday this year. Motor Neurone Disease is a fatal, rapidly progressive disease that affects the brain and spinal cord. It attacks the nerves that control movement. People can still think and feel, but their muscles refuse to work. It can leave people locked in a failing body, unable to move, talk and eventually breathe. Affecting people from all communities, MND kills five people every day in the UK, half within 14 months of diagnosis and affects up to 5,000 adults in the UK at any one time. There is no cure.